WA NDIS planning has assisted Marnie and James Pes and their sons Baylee (12) and Jye (7) to develop a lifestyle that suits everyone in the family. The family is taking part in the WA NDIS trial in the Cockburn-Kwinana area to support Baylee, who has an intellectual disability and epilepsy.
Marnie said having a child with disability placed a strain on the family. However, with support from their Local Coordinator Bev Gill, they have been able to develop a plan which has helped the whole family. “We are able to do things now as a family, that we weren’t able to before,” Marnie said. “Without Bev and the supports we’ve identified through the WA NDIS planning process, life would be much more stressful. I’m just so grateful. The planning and help identified with Bev has been absolutely amazing. She is worth her weight in gold.”
Bev is in regular phone and email contact with Marnie and is a welcome support during challenging times, especially when James, a fly-in-fly-out worker, is away. “Bev has helped when I’ve had no one else to turn to, including in emergencies. She has even come with me when I’ve had to go to Baylee’s school to speak to staff about him,” Marnie said. “When I was feeling a bit overwhelmed Bev arranged for the Disability Services Commission’s psychologist to come and see the family. The psychologist made six or seven visits and helped us get Baylee’s behaviour back on track.”
Every family member was considered in Baylee’s WA NDIS plan. It took some time to develop and has been tailored to meet the family’s unique needs and Marnie said, “It has ensured our family has stayed together. We are able to live a not so normal life – normally.”
One of the goals identified as part of the plan was for Marnie and James to be able to spend time together, so Baylee is supported five hours a fortnight to take part in community activities, as well as on weekends and during the school holidays. This also gives Marnie the opportunity to spend time with Jye on his own.
Marnie said that when Baylee’s support people go out with him they teach him various skills including how to use public transport and buy his own train and movie tickets. His independence is really improving.
Bev said Baylee’s plan works hand-in-hand with supports he receives from dedicated parents and professionals, and from the Health and Education departments.
“This combination of supports enables Baylee to join in community activities he wouldn’t otherwise be able to. He’s also learning communication and life skills and improving his independence and well-being,” Bev said. “His wonderful family report that they are so very thankful for the people already supporting Baylee, and of the new community members they have met who are welcoming and supportive of Baylee and the whole family.”